surgery went well - tho no new superpowers - 112410

tyler update via vivian, 8 p et: Tyler 's surgery went well, no bleeding, fluid is being directed elsewhere and no headaches. Tyler is haedache free for the first time in weeks! That alone is a blessing and half! Amen!

When Tyler was finally settled back in his room, I could hear him crying out for me. That certian tone that tugs at every moms heart. I was able to go in and hold his hand and his dad held his other hand. It felt good to hold his hand, knowing the surgery went well. Then Tyler said , " I didn't get any super powers?". We laughed!

surgery thurs 112410 - pls pray

 via vivian 10 pm edt 112410: Tyler to have surgery tomorrow morning - endoscopic third ventriculostomy. They hope to stop the bleeding, redirect the fluid elsewhere in the brain to drain and if they can , try to take a piece of the tumour to examine it. There is a big "if" involved, if it too dangerous, they won't proceede . Please pray.

tyler's back in hospital- via vivian 112310

The number one concern for Tyler, me and the doctors is the continued bleeding. They are and have done numerous tests to try to figure out where it is coming from and how best to treat it. It is life threatening. That has to be stopped before any thing else can be done.
Prayers that the doctors find the best treatment plan for Tyler, they are very puzzled on how to treat this. The bleeding, the fluid on the brain and the tumour.
Pray that the tumour is not cancerous.

pain management - via vivian, 110710

Tyler has another CT scan in a couple of weeks and then his nerosurgeon appointment to discuss the relults. I hope this time they figure out the problem. Tyler has had all kinds of tests, then the doctors can't find out what is wrong with him. All they know so far, is there is lesion or tumour in his head. What type they don't know yet.

9 hours ago · Comment · 

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    Vivian Ketchum They thought it was a infection and put in PiCC Iv and then they took out in a couple of days . There was no infection. Now it is just pain management until they get it figured out. The doctors told me they can't treat it until they know what it is and how to trea it.

    9 hours ago

via vivian 110610:

This morning I found a marble on the floor while I was sweeping . I picked it up and thought to myself," this is the size of what is inside my son's head". This could be causing the pain and all the related health problems my son is having. I hope the doctors can do something to help him and soon.

6 hours ago 

serious headaches, via vivian 110510

Tyler is having another headache and has gone too his room. He waits until it is a level 4 then takes his meds. But before they kick in, the pain is excruiating. Tyler starts sweating.They usually get too a level 7 before he meds starts working. Then we have to hope the meds are working, if they don't , it is a fast trip to the hospital. It is so hard to watch my son in so much pain, day after day.

Yesterday at 7:16pm

tyler's gets to go home at night, hosp during day - it's a start- via vivian 110110

Tyler update, 10 pm edt, 110110 via vivian: After some drama with his PICC IV going in, Tyler will be coming home this evening.He has to go to the hospital during the day, but can be at home at night.58 minutes ago5 hours ago