Thursday, March 17, 2011

vivian's note on tyler's last moments 031711

March 7 / 1:25 pm Tyler's last moments.

by Vivian Ketchum on Wednesday, March 16, 2011 at 11:44pm


Monday morning. I woke up quickly and glanced over to the hospital bed to see if my son was still with us.

My son was losing his brave fight with a brain tumour and family members were spending the last moments with him. It is has been little over four months since the diagnoses and I was feeling a sense of disabelief at how quickly I was losing my son. Now it was possible only hours  not a life time that I had with my son.

I got up and went over to his bed and gave him a hug and kiss. It felt great to hug him with out any tubes   or machines in my way.Just feeling the warmth of his cheeks and hands gave me a false sense of hope that he would be alright, but then I would listen to his laboured breathing and the reality of the situation would hit me. My son was dying and soon.

I put some gospel music on and washed up my face. I walked around the tiny room and my son's dad , Lenny was there and was my son's auntie, Pauline.

I was planning on going home for about hour to wash up, but Tyler's last moments was near, so instead I phoned rev Margaret to let her know that Tyler's breathing had changed.

I went and sat by his bed and rememberly fondly of the moments that I first brought him home as a baby. How I kept touching him. Smelling the newborness. Examining his tiny fingers and toes, awed by how perfect they seemed to me.

Now that my son's last moments were close, I agained touched his arms and hand, gently. Putting my head on his hand and letting my tears flow onto his hand. I could smell the faint smell of his dad's cigerette smoke mixed  with our son's unquie smell. I was trying my best to memorized my son's features, smell and how he felt, the warmth of his hands and face. I neded to capture these memories .

My son's dad was also doing what he could to capture his private memories of our son,by tenderly washing his face, ears and hands. Clipping his toes nails and making sure his fingersnails were trimmed neatly. Just like when our son was a baby.

Just then, Rev Margaret stepped into the room and had brought lunch with her. We sat around my son's bed side and ate. I glanced at the clock wishing that I could turn it back.Back to when my son was healthy and full of life. Suddenly there was change in my son breathing and I put my hand on his chest , his heart was beating rapidly. I glanced at the Rev, then Lenny told us he needed to step out for awhile.
I was still sitting by my son's bedside holding his hand, his auntie, Pauline at the end of the bed,holding his feet and the Rev was holding his other hand. I kept telling my son that I loved him and that I would be alright, then I realized that he would be missing me also. I put my hand up too his cheek and then felt his face nudging it gently. My son was in a deep coma and shouldn't have been able to move at all. my son was letting me that he loved me. Earlier he was twitching his finger, when his dad was sitting next to him and giving his auntie slight hand squeezes. My baby was letting us know he loved us.
It was twenty after one and my son was giving his last breaths , I was breathing with him until the Rev told me to breath normal. Five minutes later, my son was shrugging his shoulders as he was throwing off his physical body and breathe his last gasp and then I actually saw something leave his body. The Rev asked my sister , Pauline to get the nurse , who came to check his vitals. There was still a heart beat but very weak. Then at 1:45, my son's eyes opened up and they were very clear. I wish i could have seen what he was looking at that moment. Awe and light were what I saw in his eyes. Then my son's face went very pale and his heart beat ceased to beat.

My baby was gone.



When my son's last moments came, it was very peaceful. I held his hand. I think Tyler waited for his dad to leave the room befoore he left, maybe knowing this was very difficult for his dad.
When his dad came back into the room, Rev Margaret Mullin told lenny thato ur son was gone.Lenny collasped on his knees by the bed in tears.  
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    • Theresa L Toms Oh Vivian..... wow readding this made me feel like I was right there in the room with you guys as well. It is hard to watch a loved one pass away like this, but it is something that has to be done. Tyler is happy that he was not alone. You were there to bring him into this world, and you were there right by his side like you promised him you would be when the time came.
      20 hours ago ·
    • Margaret Mullin I felt like I was walking on holy ground being invited to join Vivian Lenny and Pauline for Tylers last couple pf hours.
      11 hours ago · · 1 personLoading...
    • Theresa L Toms Well Rev.... you have been there a lot for them, and they respected you for that. TY for being there for them!

Wednesday, March 9, 2011

tyler's funeral arrangements

Details are as follows:

via vivian 030911: Tyler's wake and funeral services will be held at Salvation Army Weetamah 324 Logan ave. on Thursday eve beginning at 7 p.m. amd on Friday a.m. starting at 11 a.m. March 10 and 11.
51 minutes ago

re cards & flowers for tyler, via rev marg 030911: In lieu of flowers Tyler's family requested that donations be made to Winnipeg Inner City Missions [wicm.ca], Box 2444 Station Main Winnipeg R3C 4A7 . Cards and letters can be sent to Vivian Ketchum at the same mail box number. Her mailbox is not secure at home. 2 hours ago


Tyler's obituary:

Tyler Owen Ketchum – Medicine Bear Man July 30 1986 – March 7 2011
After a courageous battle with a brain tumour it is with deep regret that we announce that Tyler Owen Ketchum - Medicine Bear Man, lost his fight Tuesday afternoon.
Left to cherish Tyler’s memories are his beloved furry friend ‘Fat Cat’, his mother Vivian Ketchum, his father Lenny McKay, his brothers and sisters Ryan, Daryl, Stephanie, Jestine, Eddie, and Lenny Jr, his grandmother Agnes McKay, his ‘other mother’ Leona McKay, and his best friend Glen George.
Tyler’s numerous Aunts, uncles, cousins, friends, teachers, floor hockey buddies, and his coworkers at Viewpoints, Garda, and APTN will all miss Tyler’s caring nature, his smile, and his sense of humour.
Active pallbearers will be Lenny McKay, Edwin Everett, Joey Everett, Ernie Delorand, Bobby McKay, Larry Mckay, Roseanna Daigle and Leonard Beardy. Honorary pallbearers will be all those who deeply loved Tyler.
The family will be forever grateful to Dr Kauffman and the neurosurgical team at Health Science Centre, the nurses on A5 and in SICU, the numerous doctors and health care team members, Traditional Elder, Roger Armitte, family, friends, and Rev Margaret for walking with them and Tyler through Tyler’s final stage of life.
A wake service will be held on Thursday March 10 at 7 p.m. followed by a Funeral service on Friday March 11 at Salvation Army -Weetamah 324 Logan Avenue with the Rev Margaret Mullin Officiating. Internment will follow at the Brookside cemetery

Monday, March 7, 2011

one more angel in heaven, one more star in the sky

via vivian:  my son's spirit left his body at 1:25 pm this afternoon. Tyler's auntie Pauline, his dad and I were at side when he left. Rev Margaret Mullin was also there. There was gospel music playing and the Rev read a scripture to him as passed away. It was peacefull. Arrangements will be posted later or as early as tommorow.
about an hour ago


via rev margaret: Tyler Ketchum's Spirit left to be with God at 1:25 p.m today. I will post the dates and times for the wake service and funeral service as soon as I know. here will also be a memorial service on his hiome reserve. Tyler died peacefully. There was no struggle and no pain and he was being held by Vivian, Lenny, His auntie Pauline, and I. It was an honor to be there with him.
about an hour ago

moved to private room 030711

via rev marg 030711: Tyler Ketchum has been moved to a private room in the Burn Unit at HSC. He can be monitored from there and it gives the family more privacy. Visitors are allowed. His heart is strong but his breathing is shallow and rapid. The last thing Tyler wrote to his Dad and said to me is that he will be okay however this turns out and that God is with him.46 minutes ago

Sunday, March 6, 2011

tyler - ever stubborn 030611

Tyler's brave fight against his brain tumor.

by Margaret Mullin on Sunday, March 6, 2011 at 4:59pm
 Dr Hauffmann the neuro surgeon calls Tylers tumor extremely rare and extremely unusual.  And typical of Tyler he is doing this his way and not the expected way.  Tyler Ketchum is alive and still in a coma. His body is determined to live. Life support was taken off 24 hours ago. Tyler has faced this whole journey through the brian tumor fight with calmness, dignity, and courage. The last thing he wrote to his Dad was "God is with me". One of the last things he said to me was to let everyone know that he was going to be okay wether he lived or died because God was with him.He figures either way he wins.  He was just worried about the rest of us, especially his Mom. I wish I could see what he is seeing now because every now and then he has this cute grin spread across his face.  It only lasts for a moment but those moments are precious.
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  • 4 people like this.
    • Theresa L Toms He is such a wonderful young man..... He sees things that most never see. I am so glad I got to meet him. Thank you for sharing this with us Rev.
      about an hour ago · 
    • Susan Currie That's Kauffman, Margaret....you're tired. This amazing Dr iswith a K not an H.
      about an hour ago

last moments being spent surrounded by family & friends 030611

via vivian 030611: Tyler last moments are being spent surrounded by his family and friends. Rev Margaret has also been at his side most of the night, she sits next to him, holding his hand. Tyler is in no pain at all and the nurses are doing a great job of keeping him comfortable and giving his family privacy. It is a very peaceful and serene.
about an hour ago

Tyler is taking his sweet time saying good bye. the nurses and other medical staff have been dropping to pay their respects and leaving with tears in their eyes. I spent most of the night laying next to him and other family members and friends are also sitting with him. Tyler is not left alone.
about an hour ago

Saturday, March 5, 2011

now off all machines 030511

via vivian 030511: Tyler is off all machines and family is gethered by his bedside. There is alot of llot of love and terars here.
38 minutes ago

active treatments stopping today. pls pray for tyler and family

via rev. marg: Tyler Ketchum's family are consenting to stopping all active treatments on Tyler today. Keep Tyler. His parents, his family and friends in your prayers.
about an hour ago

Thursday, March 3, 2011

getting ready to say goodbye 030311 :' (

via vivian, 030311: Tyler's family hearts are breaking as they will the weekend saying good bye. Tyler is loved by many and as we sit and comfort one another, fond memories are being shared abut Tyler. Laughter can be heard amongst the tears.
about an hour ago




via Susan Currie, parish social worker, Winnipeg Inner City MIssions: Today's MRI showed that Tyler has extensive brain damage and his respirator will be removed as soon as his family is ready. Margaret is with them at ICU. This is one of those 'shit damn' times!!!! He is only 24!!!!!
about an hour ago

Tyler is not doing well and family members are gathering this weekend to say good bye. I am at HSC, second floor, SICU , family room. We are planning to take him off the machines as early as Monday. I have contacted immediate family members already.
about an hour ago 

Wednesday, March 2, 2011

no fever, mri today, heavily sedated 1 more day

via vivian, 030211:Tyler didn't have a fever this morning and he is having a MRI test that will take about 2 hours to get done. He is heavly sedated and will be for another day.
40 minutes ago


via rev marg: Vivian ketchum wants to say thank you for everyone who has been praying. Tyler made it through the surgery and the critical 24 hours following it. They are keeping him heavily sedated for a few days to let his brain and body rest. They will wait for the biopsy result from the Tumor [about a week] and they are doing an MRI of his brain today.
8 minutes ago

Tuesday, March 1, 2011

tyler made it!!!

via vivian 030111: Tyler made it through surgery and the doctors manage to take ALL the tumour. He is and will be critical the 24 hours and he will have MRI tomorrow to see how he is doing. Might be some damage, they arfe not sure yet how much.about an hour ago

Monday, February 28, 2011

surgery tues mar 1, 7 am, v risky, pls pray

via rev margaret: We need everyone who reads this to pray that whatever is best for Tyler happens tomorrow. If they do nothing he will die because the brain tumor is aggressive and it is growing and bleeding into the brain. Surgery is very risky but it is his last hope, it is booked for Tuesday a.m starting at 7 a.m. I will be at the hospital with the family. Surgery could take up to 10 hours.
5 hours ago 

Wednesday, February 23, 2011

another surgery, risky, maybe friday - 022411


via vivian, 022311 10 pm et: Tyler is due to have brain surgery to again try to remove the tumour. It is a very risky operation, normally the doctors wouldn't operate on a patient this weak, but they have been left with no choice . They are waiting for the specialist to clear his schedule and that culd be as early as Friday. Once I know the time, will pst it. 3 hours ago

via rev margaret of wicm: 
Tyler Ketchum 24 year old with a brain tumor is in Intensive Care on a respirator. They are going to attempt surgery one more time. It's very risky but doing nothing is even riskier now. Pray lots. 
2 hours ago

viv needs our prayers today 022311

via vivian, 022311: Just recieved a phone call from the nerosureon about my son. They did aCT scan on Tyler and it showed that the tumour is bleeding , but Tylr is not in any pain. They want to have a meeting with me tomorrow to discuss options for Tyler. The doctor's tone didn't sound good and he didn't give any clue what the options were.Pray that I have the strenght to accept what they are going to tell me and do.
8 hours ago

via rev marg: 
Tyler Ketchum started having difficulty breathing this afternoon, his temperature went sky high, and his heart beat sped way up. They transferred him back into ICU around suppertime. Susan and I sat with Vivian for about an hour and a half in the waiting area before Vivian and I were allowed to go in to see him. He was much more comfortable however, he is back on the respirator.
10 hours ago 

Tuesday, February 22, 2011

back to icu, pls pray - via vivian 022211, 6 pm et

Tyler's breathing and heart could be giving out and heading back to the hospital . he is being moved back to ICU. Will phone family members by phone if it bad news.
27 minutes ago

Friday, February 18, 2011

lungs working, but bleeding has begun again, via vivian 021811

Tyler lungs are behaving again and he is holding his own, but the tumour is bleeding again after 6 weeks of not bleeding. The doctors are going to wait unitl his breathing is more stable and major surgery will be done to try to remove the tumour.



Tyler is working on his second set of nine lives. If one does not believe in prayer, come and sit by my son's bedside and see how prayers are keeping my son alive.
8 hours ago 

Thursday, February 10, 2011

surgery today went ok - via rev marg 021011

tyler update via rev marg 021011: Tyler Ketchum is still in ICU. He had more surgery today to put a feeding tube directly into his stomach and to do a Trach through his neck. He tolerated the surgery well. The tumor is not bleeding this week and the fluid on his brain is way less. If that stays stable then maybe they can do radiation to treat the tumor. Keep praying.

Wednesday, February 9, 2011

pause button - via vivian, feb. 9/11

Another wait and see moment for Tyler. There hasn't been any changes in his condition, but still not stable. It is like he hit the pause button.

Saturday, January 29, 2011

a mother's reflections - jan. 28/11

The long and short end of the stick.

by Vivian Ketchum on Friday, January 28, 2011 at 4:12pm
 I think I am beginning to understand what Tyler has, not the tumour, just how this is going to be like the next year or so
Tyler has a unknown brain tumour. The tumour is causing hydrocephalus and it is a bleeding tumour. Those two factors are creating complications such as the seizures, headaches, fever, infections etc. Those two health problems can be dealt with in the short term time frame and does pose a immedaite health risk to him.Part of the reason he is in the ICU unit right now

The longer term is the bleeding which the doctors haven't been able to control or stop. They have tried waiting and more waiting and numersous drains in different areas of his  head. The doctors want to do more and see approach, this has been the main idea since this began in October.

If they can control or stop the bleeding of the tumour, then it is radiation of the tumour, which might not happen foor another six months, is my guess. The radiation treatments are on long term basis, maybe another six months? The tumour is unknown and inoperable.

If Tyler does manage to get through all that, it is rehab for him.
During all this might mean more then one visit to the ICU unit and long term stays in the hospital.

I am hoping for the best outcome out of all this. That Tyler makes through each stage of this journey, but I am fully aware of the risks involved. Each time I have come across a health risk, I ask for prayer and it has helped.

Friday, January 28, 2011

tyler update - thurs nite

tyler update via rev marg, 012711 pm: Tyler is holding his own They needed to give him a heavy dose of anti seizure meds last night and it affected his level of consciousness enough that he needed help breathing. More decisions regarding his care will be made after the test results from today are in and the Doctors consult. 11 hours ago

Thursday, January 27, 2011

012711 - a turn for the worse

tyler update 012711, via rev marg: Tyler Ketchum's condition is failing. He is being transferrd to ICU tonight. The Tumor is bleeding out again and his brain is stressing out from the pressure. Pray. 8 hrs ago

Sunday, January 23, 2011

info on donating to the ketchum relief fund - jan 23/11

Friends - here's the latest update from Rev. Margaret of Winnipeg Inner City Missions:

Tyler is failing. This weeks problems have been; the tumor bled out again and his brain pressures and pain level went up, he is having seizures that have not gotten controlled well enough with meds yet, he has a fever from an infection in his brain caused by the external shunt to drain the fluids and blood which keeps the pressure in his head from causing damage, and they inserted a feeding tube through his nose to help keep his strength up. He is floating in and out of consciousness. When he is awake he is aware and talking. He is calmly accepting what each day brings and still concerned about others more than himself. His parents Vivian and Lenny, and Tyler and I all know this is not good. We are just taking one day at a time leaving the outcome in God's capable hands. He is getting excellent care and attention from the medical and surgical teams working with him. Good news - Vivian's sister Pauline is here and with Vivian. 


LD: The situation is taking its toll financially on Tyler's family. WICM has set up a Ketchum family relief fund - and donations made to it receive a tax receipt from WICM.

For those who wish to help, you can send snail mail donations to:

Winnipeg Inner City Missions
P.O. Box 2444 Station Main
Winnipeg Manitoba R3C 4A7


For those inclined to send donations online, I have set up a donations  button thru my PayPal account and will forward your donation to WICM. Find the donation button on this webpage:


Thanks so much for your ongoing support of the Ketchum family.

Tuesday, January 18, 2011

tough times, 011811, via vivian and rev marg

vivian: Tyler has had a crazy two days. Yesterday he was running a very high fever and his heart started beating too fast and too slow in rapid succession. He was delerious for a while and unconscious for a while and recovered again. Today he started seizuring and they had trouble getting it under control. He was totally unresponsive for a couple of hours. After the crisis he wakes and starts talking to us again.


- My son has begun his journey home. I and his dad will hold his hand as much as possible. Not sure how long or short the journey will be, but it will be done with love and respect. I read Tyler 1 Corth 13:7 this afternoon .


rev. margaret: Today after the crisis he asked me if I though we were winning the fight. I said with God whatever happens we win and he said okay just keep praying! I do not want to give this boy any false hope. He knows this tumor is very aggressive. He is not ready to let it win. Watching him suffer is difficult. Experiencing his courage and his concern for others is delightful.


- re Tyler Ketchum - The Doctors cannot treat the tumor with radiation or gamma knife until the blood clears out of the brain so they can get a clear picture. He bleeds out. It stops. The spinal fluid gets clear. They think they can start treatment and something happens again.


Tyler has had a crazy two days. Yesterday he was running a very high fever and his heart started beating too fast and too slow in rapid succession. He was delerious for a while and unconscious for a while and recovered again. Today he started seizuring and they had trouble getting it under control. He was totally unresponsive for a couple of hours. After the crisis he wakes and starts talking to us again.

Monday, January 17, 2011

recent updates- jan 15/16

via vivian, jan 16/11 - Tyler's pain level is at its max, so they have medicated him so that he is in a deep sleep. The nurse wakes up him to do vitals and you can see by his eyes, he is alot of pain. Even when he is in deep sleep, tears roll out from the corners of eyes, the pain reaches him there. As much as I want my son to stay alive, I can't bear to see him in that much pain.
2 hours ago

via rev marg, jan 15/11 - Tyler Ketchum update: 24 year old Aboriginal youth has an aggresive brain tumor. It is taking too long to get a firm diagnosis and he is failing. This young man grew up in 'the hood' and stayed good. He Completed grade 12 and security guard training and had a full time job with APTN. He wants to be a police officer. Pray he hangs in long enough for them to figure out how to treat this. It is inoperable. 
22 hours ago 

Saturday, January 15, 2011

update - jan 15/11, via vivian

The news about my son hasn't changed that much. He still has a drain in his head. They are waiting for the bleeding to clear up and he had a recent CT scan done today, there is still lots of old blood. Now anther issue has shown up, wieght loss, he has lost close to 70 pds and can't lose any moore.
Yesterday at 7:50pm ·
    • One doctor told me there was blood that has shown up in the spine MRI. He said that could be good news if there is another tumour there, they could get a piece of it. I told him that is your version of good news, another tumour? They will d another MRI in a week or so to see if ther are any changes. My poor boy will be glowing from all the CT scans and MRI tests.

Sunday, January 2, 2011

more bleeding 010211

via rev. margaret: Was just up to the hospital to see Tyler Ketchum at noon today
His tumor started bleeding again yesterday
by this a.m. they could not wake him up
By 2 p.m. today he was waking up some.
Keep praying!